From Patron to Patient: Rhod Gilbert’s Journey with Velindre

Impact on patients and families

During his cancer journey, Rhod relied on the support of his clinical nurse specialist (CNS), Becky Bailey. Clinical nurse specialists are highly qualified and skilled nurses who work in specialist teams here at Velindre. Their expertise span clinical practice, leadership, research and audit, service development, as well as staff and patient education. CNSs act as the central point of contact for patients and families throughout their entire journey, providing comprehensive information to patients about their treatment and any potential side effects, ensuring patients understand everything. As well as conducting clinical assessments and liaising with consultants, CNSs take a holistic approach to patient care. They’ll assess whether patients require more in-depth support like counselling, complementary therapies or welfare rights advice, which are all services funded by Velindre Cancer Charity. This holistic assessment is vital for patients with head and neck cancer, who often have complex painful side effects that can cause difficulties with patients’ needs like eating, drinking and sleeping.

Rhod’s CNS, Becky, played an important role in managing the complex and painful side effects of his treatment. Her clinical care and symptom management were essential, especially when Rhod fell seriously ill after his first round of chemotherapy. Becky was able to assess him, prescribe the necessary medication and provide continuous support. The emotional support provided by Becky was equally vital. Rhod relied on Becky for reassurance and advice–whether by phone or email, she helped Rhod to navigate the challenges of his treatment. The relationship between patients and their CNSs is one of huge importance. Becky describes treatment as “a rollercoaster every single day; it’s really overwhelming for patients.” Having a trusting and supportive relationship with a CNS means patients have someone to turn to when they’re struggling and it can be this relationship that ultimately helps patients to complete their treatment. The Charity funds 50% of the CNS roles here at Velindre and without this funding, patients wouldn’t have access to their essential support and care.

Rhod’s CNS, Becky, played an important role in managing the complex and painful side effects of his treatment. Her clinical care and symptom management were essential, especially when Rhod fell seriously ill after his first round of chemotherapy. Becky was able to assess him, prescribe the necessary medication and provide continuous support. The emotional support provided by Becky was equally vital. Rhod relied on Becky for reassurance and advice–whether by phone or email, she helped Rhod to navigate the challenges of his treatment. The relationship between patients and their CNSs is one of huge importance. Becky describes treatment as “a rollercoaster every single day; it’s really overwhelming for patients.” Having a trusting and supportive relationship with a CNS means patients have someone to turn to when they’re struggling and it can be this relationship that ultimately helps patients to complete their treatment. The Charity funds 50% of the CNS roles here at Velindre and without this funding, patients wouldn’t have access to their essential support and care.